Self-advocacy after spinal cord injury
Speaking up for your needs
Learning to advocate for yourself is an important part of living independently after spinal cord injury.
Self-advocacy means understanding your needs, speaking up, and asking for the support, services, or adjustments that help you live the life you want.
While this can feel challenging at first, building self-advocacy skills can help increase confidence, independence, and control over your decisions.
You don’t have to do it alone either. Some people choose to advocate independently, while others prefer support from family, friends, peer mentors, or formal advocacy services.
What does self-advocacy look like?
Self-advocacy can involve:
Explaining your support needs
Asking questions
Speaking up when something doesn’t feel right
Requesting adjustments or accessibility changes
Making informed choices about your care and services
Understanding and exercising your rights
It can also involve seeking support in more difficult situations, such as:
Discrimination
Abuse or neglect
Not being listened to
Financial exploitation
Service complaints
Tips for advocating for yourself
Building self-advocacy skills takes time and practice. Some helpful things to remember include:
Recognise that your needs matter: having support needs is normal, and it’s okay to ask for help or adjustments when needed.
Understand what your needs are: take time to think about
What support helps you most
What barriers you’re facing
What outcomes you want
The clearer you are about your needs, the easier it can be to communicate them to others.
Believe in your ability to make change: self-advocacy is about recognising that your voice matters and that you have the right to make decisions about your own life.
Know your rights: understanding your rights can help you feel more confident when advocating for yourself.
Useful information about disability rights is available through:
Speak up: people may not know what support you need unless you tell them. Communicating clearly and directly can help others better understand how to support you.
Be kind to yourself: adjusting after spinal cord injury can bring challenges and setbacks. Give yourself permission to feel frustrated, overwhelmed, or emotional at times while continuing to build confidence and resilience.
Advocacy support services
Sometimes additional support can help when navigating more complex situations.
Advocacy organisations may assist with:
Disability rights information
Complaints and disputes
Accessing services
NDIS-related concerns
Communication and support planning
Some examples of these organisations are included below in ‘helpful resources’.
Peer mentors can also provide practical advice and lived experience insights around navigating services, relationships and everyday challenges after SCI.
At estara, we work alongside people living with spinal cord injury and disability to support independence, confidence, and informed decision-making.
Helpful Resources
Here are some additional resources on disability advocacy organisations:
You may also like our own pages on:
Other useful resources/podcasts: